The Rare Disease Action Forum
Improving Access to Diagnosis, Treatment and Care for Patients with Rare Diseases
Who we are
The RDAF is a unique not-for-profit multi-stakeholder organization in the field of rare diseases in Switzerland. It aims to increase awareness about rare diseases and achieve adaptations of the Swiss regulatory framework to improve patients’ access to diagnosis, treatment and care.
We bring together patient and research organizations, industry and healthcare providers active in the rare disease area to exchange experiences and perspectives and define solutions for joint action.
Raise awareness about the challenges the rare disease community faces
Shape the regulatory framework in the field of rare diseases in Switzerland
Enable equal and fair access to diagnosis, treatment and care for patients with rare diseases