For better access to diagnosis and treatment of rare diseases – forum founded

    25 Feb, 2016

    In the context of the International Rare Disease Day on 29 February 2016, the Rare Disease Action Forum (RDAF) was founded by Curatis, Santhera Pharmaceuticals, SFL, Shire and Vertex, companies active in the pharmaceutical and biotechnology sector. Press release (PDF): English, German, French, Italian

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    The RDAF publishes its newsletter

    The newsletter, which is published twice a year, gives an overview of all the Rare Disease Action Forum (RDAF) activities during the past half year to raise awareness about rare diseases in Switzerland and improve patient’s access to diagnosis, treatment and care....

    RDAF 2022 General Assembly Meeting

    On 21 March 2022, the Rare Disease Action Forum (RDAF) held its annual General Assembly meeting. An overview of the RDAF’s activities in 2021 and an outlook for 2022 were presented. The RDAF President welcomed the new members and underlined that the collaborative...