For better access to diagnosis and treatment of rare diseases – forum founded

    25 Feb, 2016

    In the context of the International Rare Disease Day on 29 February 2016, the Rare Disease Action Forum (RDAF) was founded by Curatis, Santhera Pharmaceuticals, SFL, Shire and Vertex, companies active in the pharmaceutical and biotechnology sector. Press release (PDF): English, German, French, Italian

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    Outcome of the RDAF 2023 General Assembly meeting

    The Rare Disease Action Forum (RDAF) held its annual General Assembly meeting on 28 March 2023. During the meeting, the RDAF Secretariat presented an overview of the Association’s activities in 2022 and an outlook for 2023. The RDAF President underlined the progress...

    13th International Rare Disease Day in Switzerland

    The Rare Disease Action Forum supports the International Rare Disease Day, a globally coordinated movement that advocates for equal access to healthcare, treatments and diagnoses for patients with rare diseases, which takes place on 28 February. Watch the Rare Disease...