ProRaris, the Swiss rare diseases patient alliance, launched a petition regarding Swiss participation in European Reference Networks (ERNs)

    13 Jul, 2017

    ProRaris calls for Swiss authorities to take urgent actions to enable participation of Swiss healthcare providers and reference centers for rare diseases in the European Reference Networks (ERNs). Swiss healthcare providers are currently unable to be part of the ERNs due to the prevailing political situation. The RDAF supports the petition as participation in the ERNs is vital to maintain Switzerland’s attractivity in the area of research as well as to improve the availability and quality of treatments and care for patients with rare diseases.

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    International Rare Disease Day in Switzerland

    The Rare Disease Action Forum (RDAF) supports the International Rare Disease Day, a worldwide campaign that promotes access to diagnosis and treatment for individuals living with a rare disease. Scheduled for 29 February 2024, this awareness day aims to address the...