In a decision taken in May 2017, the RDAF board amended the Forum’s membership conditions. The RDAF membership is now open to the following categories of actors: Patient organizations in the area of rare diseases; not-for-profit structures or organizations focused on rare diseases; companies that develop and/or commercialize treatments or diagnostics, or provide related services in the area of rare diseases; healthcare institutions and professionals active in the area of rare diseases; private companies providing services or products linked to rare diseases; and health insurance companies. This decision aims to reinforce the RDAF’s multistakeholder approach to finding solutions to facilitate access to therapies for patients with rare diseases in Switzerland.
RDAF hosts multi-stakeholder workshop on post-marketing registries
The Rare Disease Action Forum (RDAF) will host a multi-stakeholder workshop on post-marketing registries for rare diseases on 21 September 2023 (14.00 – 19.00 CEST) in Basel, Switzerland. The workshop will gather stakeholders active in the rare disease field to...