The Rare Disease Actions Forum (RDAF) amended its membership conditions

    29 Aug, 2017

    In a decision taken in May 2017, the RDAF board amended the Forum’s membership conditions. The RDAF membership is now open to the following categories of actors: Patient organizations in the area of rare diseases; not-for-profit structures or organizations focused on rare diseases; companies that develop and/or commercialize treatments or diagnostics, or provide related services in the area of rare diseases; healthcare institutions and professionals active in the area of rare diseases; private companies providing services or products linked to rare diseases; and health insurance companies. This decision aims to reinforce the RDAF’s multistakeholder approach to finding solutions to facilitate access to therapies for patients with rare diseases in Switzerland.

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    Joint statement on the KVV/OAMal and KLV/OPAS revision

    The RDAF co-signed a joint statement with other stakeholders on the revision of the Health Insurance Ordinance (KVV/OAMal) and Health Benefits Ordinance (KLV/OPAS). The statement highlights the potential negative impacts of the revision, including the following: -...