In May 2018, Swedish Orphan Biovitrum, a company specialized in the area of rare diseases, the Swiss umbrella patient organization ProRaris and the Swiss Foundation for Research on Muscle Diseases (SSEM/FSRMM) became members of the Rare Disease Action Forum (RDAF). In total, the Forum now hosts fifteen members who represent major groups of stakeholders in the area of rare diseases including industry, patient organizations, healthcare organizations, physicians and foundations for research. With its increased membership, the RDAF reinforces its contribution towards the development of sustainable solutions that improve the situation of patients with rare diseases in Switzerland.
RDAF hosts multi-stakeholder workshop on post-marketing registries
The Rare Disease Action Forum (RDAF) will host a multi-stakeholder workshop on post-marketing registries for rare diseases on 21 September 2023 (14.00 – 19.00 CEST) in Basel, Switzerland. The workshop will gather stakeholders active in the rare disease field to...