New members joined the RDAF in May 2018

    4 Jun, 2018

    In May 2018, Swedish Orphan Biovitrum, a company specialized in the area of rare diseases, the Swiss umbrella patient organization ProRaris and the Swiss Foundation for Research on Muscle Diseases (SSEM/FSRMM) became members of the Rare Disease Action Forum (RDAF). In total, the Forum now hosts fifteen members who represent major groups of stakeholders in the area of rare diseases including industry, patient organizations, healthcare organizations, physicians and foundations for research. With its increased membership, the RDAF reinforces its contribution towards the development of sustainable solutions that improve the situation of patients with rare diseases in Switzerland.

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    RDAF hosts Swiss Rare Disease Summit on 26 November 2024

    The Rare Disease Action Forum (RDAF) will host the Swiss Rare Disease Summit on 26 November 2024 (9.30 – 17.30 CEST). The event will take place in Bern, with the additional option of virtual attendance. The Swiss Rare Disease Summit endeavors to forge a collective...