Position paper on IV revision finalizedOn 12 July 2018, the Rare Disease Action Forum (RDAF) finalized a position paper on the ongoing revision of the Swiss Invalidity Insurance (IV). The discussions on this issue are ongoing in Parliament, where the Federal Council’s proposal dated 15 February 2017 is being examined. Among others aspects, our position paper highlights the fact that patients with rare diseases will be greatly impacted by the revision and presents aspects that are important for improving the situation of patients with rare diseases in Switzerland.
RDAF 2022 General Assembly Meeting
On 21 March 2022, the Rare Disease Action Forum (RDAF) held its annual General Assembly meeting. An overview of the RDAF’s activities in 2021 and an outlook for 2022 were presented. The RDAF President welcomed the new members and underlined that the collaborative...