Position paper on IV revision finalizedOn 12 July 2018, the Rare Disease Action Forum (RDAF) finalized a position paper on the ongoing revision of the Swiss Invalidity Insurance (IV). The discussions on this issue are ongoing in Parliament, where the Federal Council’s proposal dated 15 February 2017 is being examined. Among others aspects, our position paper highlights the fact that patients with rare diseases will be greatly impacted by the revision and presents aspects that are important for improving the situation of patients with rare diseases in Switzerland.
Outcome of the RDAF 2023 General Assembly meeting
The Rare Disease Action Forum (RDAF) held its annual General Assembly meeting on 28 March 2023. During the meeting, the RDAF Secretariat presented an overview of the Association’s activities in 2022 and an outlook for 2023. The RDAF President underlined the progress...