Position paper on IV revision finalizedOn 12 July 2018, the Rare Disease Action Forum (RDAF) finalized a position paper on the ongoing revision of the Swiss Invalidity Insurance (IV). The discussions on this issue are ongoing in Parliament, where the Federal Council’s proposal dated 15 February 2017 is being examined. Among others aspects, our position paper highlights the fact that patients with rare diseases will be greatly impacted by the revision and presents aspects that are important for improving the situation of patients with rare diseases in Switzerland.
The RDAF organizes a webinar on early diagnosis for rare diseases in Switzerland
The Rare Disease Action Forum (RDAF) will host a multi-stakeholder webinar on ‘Early diagnosis for rare diseases’ on 29 March 2023, 17.00-18.30 CET. The webinar focuses on the diagnosis of rare diseases in Switzerland, provides an overview of the related challenges,...