New members joined the RDAF in October 2018

    18 Oct, 2018

    In October 2018, Dipharma, the Swiss Society for Porphyria and Prof. Dr med. Philipp Latzin of the Inselspital University hospital’s children clinic in Bern joined the Rare Disease Action Forum (RDAF), which now hosts a total of 19 members. With our multistakeholder approach, the RDAF contributes towards the development of sustainable solutions to improve the situation of patients with rare diseases in Switzerland.

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    The RDAF publishes its newsletter

    The newsletter, which is published twice a year, gives an overview of all the Rare Disease Action Forum (RDAF) activities during the past half year to raise awareness about rare diseases in Switzerland and improve patient’s access to diagnosis, treatment and care....

    RDAF 2022 General Assembly Meeting

    On 21 March 2022, the Rare Disease Action Forum (RDAF) held its annual General Assembly meeting. An overview of the RDAF’s activities in 2021 and an outlook for 2022 were presented. The RDAF President welcomed the new members and underlined that the collaborative...