The Rare Disease Action Forum welcomes the Rare Disease Day

    28 Feb, 2019

    While rare means rare for each individual disease, rare becomes many across all those diseases that affect 300 million people and their families who have to cope with these diseases and their impact on quality of life and life expectancy.

    The Rare Disease Action Forum joins in and shares the message of the rare disease community to raise awareness for patients with a rare disease in Switzerland. In this respect, we extend special congratulations to ProRaris, the Swiss umbrella organization of patients with rare diseases. ProRaris, an RDAF member organization celebrates its 10th anniversary and it’s 10th Rare Disease Day in Switzerland this year.

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    RDAF hosts Swiss Rare Disease Summit on 26 November 2024

    The Rare Disease Action Forum (RDAF) will host the Swiss Rare Disease Summit on 26 November 2024 (9.30 – 17.30 CEST). The event will take place in Bern, with the additional option of virtual attendance. The Swiss Rare Disease Summit endeavors to forge a collective...