The Rare Disease Action Forum welcomes the Rare Disease Day

28 Feb, 2019

While rare means rare for each individual disease, rare becomes many across all those diseases that affect 300 million people and their families who have to cope with these diseases and their impact on quality of life and life expectancy.

The Rare Disease Action Forum joins in and shares the message of the rare disease community to raise awareness for patients with a rare disease in Switzerland. In this respect, we extend special congratulations to ProRaris, the Swiss umbrella organization of patients with rare diseases. ProRaris, an RDAF member organization celebrates its 10th anniversary and it’s 10th Rare Disease Day in Switzerland this year.

13th International Rare Disease Day in Switzerland

The Rare Disease Action Forum supports the International Rare Disease Day, a globally coordinated movement that advocates for equal access to healthcare, treatments and diagnoses for patients with rare diseases, which takes place on 28 February. Watch the Rare Disease...

The RDAF organizes a webinar on early diagnosis for rare diseases in Switzerland

The Rare Disease Action Forum (RDAF) will host a multi-stakeholder webinar on ‘Early diagnosis for rare diseases’ on 29 March 2023, 17.00-18.30 CET. The webinar focuses on the diagnosis of rare diseases in Switzerland, provides an overview of the related challenges,...