Today is #RAREDISEASEDAY

    28 Feb, 2019

    On 2 March 2019, ProRaris, the Swiss patient umbrella organization for rare diseases, will host the 9th Rare Disease Day meeting in Basel, Switzerland. The aim of this event is to raise awareness and generate momentum to further improve the situation for patients with rare diseases. The Rare Disease Action Forum (RDAF), a multi-stakeholder platform for rare diseases in Switzerland, will attend the event in Basel. This year’s focus is on how to improve integration of patients isolated by their rare diseases into supportive networks within the Swiss community and health system. More information on the Rare Disease Day 2019 organized by ProRaris in the link below. www.proraris.ch/de/homepage.html

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    Joint statement on the KVV/OAMal and KLV/OPAS revision

    The RDAF co-signed a joint statement with other stakeholders on the revision of the Health Insurance Ordinance (KVV/OAMal) and Health Benefits Ordinance (KLV/OPAS). The statement highlights the potential negative impacts of the revision, including the following: -...