On 2 March 2019, ProRaris, the Swiss patient umbrella organization for rare diseases, will host the 9th Rare Disease Day meeting in Basel, Switzerland. The aim of this event is to raise awareness and generate momentum to further improve the situation for patients with rare diseases. The Rare Disease Action Forum (RDAF), a multi-stakeholder platform for rare diseases in Switzerland, will attend the event in Basel. This year’s focus is on how to improve integration of patients isolated by their rare diseases into supportive networks within the Swiss community and health system. More information on the Rare Disease Day 2019 organized by ProRaris in the link below. www.proraris.ch/de/homepage.html
RDAF hosts multi-stakeholder workshop on post-marketing registries
The Rare Disease Action Forum (RDAF) will host a multi-stakeholder workshop on post-marketing registries for rare diseases on 21 September 2023 (14.00 – 19.00 CEST) in Basel, Switzerland. The workshop will gather stakeholders active in the rare disease field to...