RDAF welcomes new board members in 2019

26 Mar, 2019

In March 2019, the General Assembly of the Rare Disease Action Forum (RDAF) elected the Forum’s board, welcoming two new board members: Dr. Pierre Morneau, General Manager at Takeda Switzerland and Dr. Saskia Karg, Project Lead Rare Diseases at the University Children’s Hospital Zürich.

The two new board members succeed Ms Rute Fernandes, General Manager at Takeda Switzerland and Matthias Heck, Director Global Value, Access and Policy at Alexion who did not run for reelection. The secretariat would like to thank Rute Fernandes and Matthias Heck for the considerable expertise and great contributions made as a board members of the RDAF. The new board composition reaffirms the multistakeholder approach of the Forum. The RDAF is looking forward to continuing its efforts to facilitate the development of sustainable solutions that improve the situation of patients with rare diseases in Switzerland.

RDAF hosts multi-stakeholder workshop on post-marketing registries

The Rare Disease Action Forum (RDAF) will host a multi-stakeholder workshop on post-marketing registries for rare diseases on 21 September 2023 (14.00 – 19.00 CEST) in Basel, Switzerland. The workshop will gather stakeholders active in the rare disease field to...

RDAF Newsletter

We just released the first issue of the RDAF newsletter, which gives an overview of key policy developments and RDAF activities in the first half of the year. Highlights include: Overview of the latest policy developments relevant for the rare disease field...