The RDAF is attending the 10th European Conference on Rare Diseases & Orphan Products (14-15 May 2020). We will connect online with patient representatives, policy makers, researchers, clinicians, industry representatives, payers and regulators at the patient-led rare disease conference, to discuss challenges in diagnosis, development and treatment for rare diseases that are core focus areas for the RDAF. The RDAF will also participate in sessions providing insights on the future of rare diseases, the promises of digital health and improving access and affordability.
RDAF hosts multi-stakeholder workshop on post-marketing registries
The Rare Disease Action Forum (RDAF) will host a multi-stakeholder workshop on post-marketing registries for rare diseases on 21 September 2023 (14.00 – 19.00 CEST) in Basel, Switzerland. The workshop will gather stakeholders active in the rare disease field to...