RETINA SUISSE and the SWISS HEMOPHILIA SOCIETY (SHG) join the Rare Disease Action Forum

    28 Sep, 2020

    We proudly welcome the patient organizations Retina Suisse and the Swiss Hemophilia Society (SHG) as the newest member of the Rare Disease Action Forum. Reinforcing RDAF’s multi-stakeholder approach, they will be joining our other members from industry, patient organizations, healthcare professionals, and research organizations. We look forward to their contribution to the collaborative efforts at the RDAF multi-stakeholder platform. Together we will continue our efforts to improve access to diagnosis, treatment and care for patients with rare diseases in Switzerland.

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    RDAF position on the KVV / KLV revision

    The revision of the Health Insurance Ordinance (KVV/OAMal) and the Health Benefits Ordinance (KLV/OPAS), presented by the Federal Council in September, will further deteriorate access to treatment and quality of care for rare disease patients in Switzerland. The...