World Rare Disease Day on 28 February 2021

    26 Feb, 2021

    This year’s world Rare Disease Day takes place on 28 February 2021. To mark the occasion, thousands of events are being organized across the world with the common objectives of raising awareness about rare diseases and connecting patients, their relatives and all other stakeholders involved in the field of rare diseases. In Switzerland, the RDAF gathers stakeholders from the industry, patient organizations, healthcare professionals and research organizations to raise awareness about rare diseases, foster dialogue and define common solutions for action. To this end, the RDAF leads and moderates multi-stakeholder events and conducts a wide range of activities to foster development and access to treatment in Switzerland, which is key to improving the lives of patients with rare diseases. Follow us on Twitter and LinkedIn to receive information about our upcoming events. Read more about the RDAF’s contribution to raising awareness about rare diseases and improving access to diagnosis, treatment and care in Switzerland.

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    Joint statement on the KVV/OAMal and KLV/OPAS revision

    The RDAF co-signed a joint statement with other stakeholders on the revision of the Health Insurance Ordinance (KVV/OAMal) and Health Benefits Ordinance (KLV/OPAS). The statement highlights the potential negative impacts of the revision, including the following: -...