The RDAF is attending the Rare Disease Day virtual event organized by ProRaris on 6 March. We will connect online with patient organizations, policy makers, industry representatives, physicians, researchers, payors and regulators active in the field of rare diseases in Switzerland. We will join discussions on the specialized centers, the national policy and the registry for rare diseases in Switzerland. We will also follow with great interest presentations about pilot projects focusing on metabolic and neuromuscular diseases. The RDAF gathers stakeholders from the industry, patient organizations such as ProRaris, healthcare professionals and research organizations in order to raise awareness about rare diseases, foster dialogue and define common solutions for action. To this end, the RDAF leads and moderates multi-stakeholder events and conducts a wide range of activities to foster development and access to treatment in Switzerland, which is key to improving the lives of patients with rare diseases. Read our latest position on the Swiss healthcare policy here. Follow us on Twitter and LinkedIn to receive information about our upcoming events. Read more about the RDAF’s contribution to raising awareness about rare diseases and improving access to diagnosis, treatment and care in Switzerland.
13th International Rare Disease Day in Switzerland
The Rare Disease Action Forum supports the International Rare Disease Day, a globally coordinated movement that advocates for equal access to healthcare, treatments and diagnoses for patients with rare diseases, which takes place on 28 February. Watch the Rare Disease...