The RDAF will host a free webinar on ‘Access to diagnosis and treatment of rare diseases in Switzerland – Current status, challenges and initiatives on 25 March 2021 (8.30-9.30 CET). Join us to hear experts in the field of rare diseases from patient organizations, healthcare professionals and industry sharing their insights on the patients’ perspective, the regulatory framework for orphan drugs development and the conditions for access to treatment for rare diseases in Switzerland. This webinar will provide an overview of the current challenges and opportunities in the field of rare diseases and give participants the opportunity to exchange knowledge and best practices on this topic, helping to promote research and development in this area. Find out more about the RDAF initiatives to raise awareness about rare diseases and improve access to diagnosis, treatment and care.
Outcome of the RDAF 2023 General Assembly meeting
The Rare Disease Action Forum (RDAF) held its annual General Assembly meeting on 28 March 2023. During the meeting, the RDAF Secretariat presented an overview of the Association’s activities in 2022 and an outlook for 2023. The RDAF President underlined the progress...