RDAF is hosting a free webinar on “Access to Diagnosis and Treatment of Rare Diseases in Switzerland” on 25 March 2021

    8 Mar, 2021

    The RDAF will host a free webinar on ‘Access to diagnosis and treatment of rare diseases in Switzerland – Current status, challenges and initiatives on 25 March 2021 (8.30-9.30 CET). Join us to hear experts in the field of rare diseases from patient organizations, healthcare professionals and industry sharing their insights on the patients’ perspective, the regulatory framework for orphan drugs development and the conditions for access to treatment for rare diseases in Switzerland. This webinar will provide an overview of the current challenges and opportunities in the field of rare diseases and give participants the opportunity to exchange knowledge and best practices on this topic, helping to promote research and development in this area. Find out more about the RDAF initiatives to raise awareness about rare diseases and improve access to diagnosis, treatment and care.

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    RDAF position on the KVV / KLV revision

    The revision of the Health Insurance Ordinance (KVV/OAMal) and the Health Benefits Ordinance (KLV/OPAS), presented by the Federal Council in September, will further deteriorate access to treatment and quality of care for rare disease patients in Switzerland. The...