The RDAF Organizes a Multi-Stakeholder Workshop on Registries for Rare Diseases on 30 June 2021

    20 May, 2021

    The RDAF will host a virtual multi-stakeholder workshop dedicated to ‘Registries for rare diseases in Switzerland’ on 30 June, 2:00-5:00 pm (CEST). The workshop aims to discuss the Swiss Rare Disease Registry and disease specific registries and to define pathways to foster the development and synergies between them. Experts in the field of rare diseases from patient organizations, industry, healthcare professionals and public authorities will share their perspective and engage in discussions about the opportunities and challenges for registries for rare diseases.

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    International Rare Disease Day in Switzerland

    The Rare Disease Action Forum (RDAF) supports the International Rare Disease Day, a worldwide campaign that promotes access to diagnosis and treatment for individuals living with a rare disease. Scheduled for 29 February 2024, this awareness day aims to address the...