The RDAF will host a virtual multi-stakeholder workshop dedicated to ‘Registries for rare diseases in Switzerland’ on 30 June, 2:00-5:00 pm (CEST). The workshop aims to discuss the Swiss Rare Disease Registry and disease specific registries and to define pathways to foster the development and synergies between them. Experts in the field of rare diseases from patient organizations, industry, healthcare professionals and public authorities will share their perspective and engage in discussions about the opportunities and challenges for registries for rare diseases.
RDAF hosts multi-stakeholder workshop on post-marketing registries
The Rare Disease Action Forum (RDAF) will host a multi-stakeholder workshop on post-marketing registries for rare diseases on 21 September 2023 (14.00 – 19.00 CEST) in Basel, Switzerland. The workshop will gather stakeholders active in the rare disease field to...