World Rare Disease Day

    21 Feb, 2022

    This year’s Rare Disease Day takes place on 28 February. To mark the occasion, thousands of events are being organized across the world with the common objectives of raising awareness about rare diseases and connecting patients, their relatives and all other stakeholders involved in the field of rare diseases. The Rare Disease Action Forum (RDAF) gathers patient organizations, industry, research organizations and healthcare professionals active in the field of rare diseases in Switzerland to contribute to raising awareness and improving patients’ access.

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    RDAF hosts multi-stakeholder workshop on post-marketing registries

    The Rare Disease Action Forum (RDAF) will host a multi-stakeholder workshop on post-marketing registries for rare diseases on 21 September 2023 (14.00 – 19.00 CEST) in Basel, Switzerland. The workshop will gather stakeholders active in the rare disease field to...

    RDAF Newsletter

    We just released the first issue of the RDAF newsletter, which gives an overview of key policy developments and RDAF activities in the first half of the year. Highlights include: Overview of the latest policy developments relevant for the rare disease field...