This year’s Rare Disease Day takes place on 28 February. To mark the occasion, thousands of events are being organized across the world with the common objectives of raising awareness about rare diseases and connecting patients, their relatives and all other stakeholders involved in the field of rare diseases. The Rare Disease Action Forum (RDAF) gathers patient organizations, industry, research organizations and healthcare professionals active in the field of rare diseases in Switzerland to contribute to raising awareness and improving patients’ access.
RDAF hosts multi-stakeholder workshop on post-marketing registries
The Rare Disease Action Forum (RDAF) will host a multi-stakeholder workshop on post-marketing registries for rare diseases on 21 September 2023 (14.00 – 19.00 CEST) in Basel, Switzerland. The workshop will gather stakeholders active in the rare disease field to...