The RDAF joins the Rare Disease Day organized by ProRaris

    4 Mar, 2022

    On 5 March 2022, the Rare Disease Action Forum (RDAF) will participate in the Swiss Rare Disease Day organized by the umbrella organization for patient organizations in the field of rare diseases, ProRaris. The RDAF is looking forward to hear the latest developments and exchange with other stakeholders on topics such as access to treatment, research on rare diseases, the Swiss rare disease policy, challenges for innovative therapies and perspectives from patients.

    Continue reading

    Joint statement on the KVV/OAMal and KLV/OPAS revision

    The RDAF co-signed a joint statement with other stakeholders on the revision of the Health Insurance Ordinance (KVV/OAMal) and Health Benefits Ordinance (KLV/OPAS). The statement highlights the potential negative impacts of the revision, including the following: -...