The RDAF joins the Rare Disease Day organized by ProRaris

    4 Mar, 2022

    On 5 March 2022, the Rare Disease Action Forum (RDAF) will participate in the Swiss Rare Disease Day organized by the umbrella organization for patient organizations in the field of rare diseases, ProRaris. The RDAF is looking forward to hear the latest developments and exchange with other stakeholders on topics such as access to treatment, research on rare diseases, the Swiss rare disease policy, challenges for innovative therapies and perspectives from patients.

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    RDAF hosts Swiss Rare Disease Summit on 26 November 2024

    The Rare Disease Action Forum (RDAF) will host the Swiss Rare Disease Summit on 26 November 2024 (9.30 – 17.30 CEST). The event will take place in Bern, with the additional option of virtual attendance. The Swiss Rare Disease Summit endeavors to forge a collective...