On 5 March 2022, the Rare Disease Action Forum (RDAF) will participate in the Swiss Rare Disease Day organized by the umbrella organization for patient organizations in the field of rare diseases, ProRaris. The RDAF is looking forward to hear the latest developments and exchange with other stakeholders on topics such as access to treatment, research on rare diseases, the Swiss rare disease policy, challenges for innovative therapies and perspectives from patients.
RDAF hosts multi-stakeholder workshop on post-marketing registries
The Rare Disease Action Forum (RDAF) will host a multi-stakeholder workshop on post-marketing registries for rare diseases on 21 September 2023 (14.00 – 19.00 CEST) in Basel, Switzerland. The workshop will gather stakeholders active in the rare disease field to...