The RDAF is continuously active to raise awareness about rare diseases and improve patients’ access to diagnosis, treatment and care in Switzerland. Below are the highlights of the RDAF activities in the second half the year.
The full newsletter is available here.
The revision of the Health Insurance Ordinance (KVV/OAMal) and the Health Benefits Ordinance (KLV/OPAS), presented by the Federal Council in September, will further deteriorate access to treatment and quality of care for rare disease patients in Switzerland. The...
The report from the RDAF multi-stakeholder workshop on post-marketing registries for rare diseases, which took place on 21 September 2023 in Basel, is now available. The workshop fostered an inclusive dialogue between academia, healthcare professionals, industry,...