The Rare Disease Action Forum supports the International Rare Disease Day, a globally coordinated movement that advocates for equal access to healthcare, treatments and diagnoses for patients with rare diseases, which takes place on 28 February.

Watch the Rare Disease Action Forum President Shayesteh Fürst-Ladani share her views on how the RDAF supports this initiative and what she thinks such a day can accomplish.

The RDAF also supports the Swiss initiative for the Rare Disease Day and will participate in the webinar organized by ProRaris on 4 March 2023 to discuss how to improve patient involvement in clinical research and healthcare with other stakeholders.

Together with our members, the public, authorities and other actors from the Swiss rare disease community, we constantly strive to improve access to diagnostics and innovative treatments and raise awareness of the challenges and hurdles for rare disease patients.