RDAF hosts multi-stakeholder workshop on post-marketing registries

13 Jul, 2023

The Rare Disease Action Forum (RDAF) will host a multi-stakeholder workshop on post-marketing registries for rare diseases on 21 September 2023 (14.00 – 19.00 CEST) in Basel, Switzerland.

The workshop will gather stakeholders active in the rare disease field to discuss the set up and management of post-marketing registries for orphan drugs.

The event aims to:

Exchange experiences on the set-up and management of registries in Switzerland and neighboring countries
Define an actionable framework for the creation and management of post-marketing registries for rare diseases in Switzerland

The workshop will be held in German.

The event will be followed by a networking apéro, to enable participants to continue the discussions and meet other actors from the Swiss rare disease community.

Please register here.

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