RDAF Newsletter

    13 Jul, 2023

    We just released the first issue of the RDAF newsletter, which gives an overview of key policy developments and RDAF activities in the first half of the year.

    Highlights include:

    • Overview of the latest policy developments relevant for the rare disease field
    • Establishment of the permanent subgroup on orphan drug pricing & reimbursement
    • RDAF events
    • Outlook on planned activities for the second half of the year, including our multi-stakeholder workshop on post-marketing registries for rare diseases

    The full newsletter is available here.

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    RDAF hosts multi-stakeholder workshop on post-marketing registries

    The Rare Disease Action Forum (RDAF) will host a multi-stakeholder workshop on post-marketing registries for rare diseases on 21 September 2023 (14.00 – 19.00 CEST) in Basel, Switzerland. The workshop will gather stakeholders active in the rare disease field to...

    Outcome of the RDAF 2023 General Assembly meeting

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