We just released the first issue of the RDAF newsletter, which gives an overview of key policy developments and RDAF activities in the first half of the year.
Highlights include:
- Overview of the latest policy developments relevant for the rare disease field
- Establishment of the permanent subgroup on orphan drug pricing & reimbursement
- RDAF events
- Outlook on planned activities for the second half of the year, including our multi-stakeholder workshop on post-marketing registries for rare diseases
The full newsletter is available here.