Centre for Community-Driven Research (CCDR) joins the Rare Disease Action Forum

    3 Apr, 2024

    We are very pleased to welcome the Centre for Community-Driven Research (CCDR) as the newest member of the Rare Disease Action Forum. CCDR’s focus on facilitating patient engagement and improving health system navigation will bring valuable new perspectives and reinforce RDAF’s multi-stakeholder approach, alongside other members from industry, patient organizations, healthcare professionals, and research institutions. Together we will continue our efforts to improve access to diagnosis, treatment and care for patients with rare diseases in Switzerland.

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    Boehringer Ingelheim joins the Rare Disease Action Forum

    We are delighted to announce Boehringer Ingelheim as new member of the Rare Disease Action Forum. Boehringer Ingelheim’s membership fortifies RDAF's multi-stakeholder base, alongside other members from industry, patient organizations, healthcare professionals, and...

    International Rare Disease Day in Switzerland

    The Rare Disease Action Forum (RDAF) supports the International Rare Disease Day, a worldwide campaign that promotes access to diagnosis and treatment for individuals living with a rare disease. Scheduled for 29 February 2024, this awareness day aims to address the...