We are very pleased to welcome the Centre for Community-Driven Research (CCDR) as the newest member of the Rare Disease Action Forum. CCDR’s focus on facilitating patient engagement and improving health system navigation will bring valuable new perspectives and reinforce RDAF’s multi-stakeholder approach, alongside other members from industry, patient organizations, healthcare professionals, and research institutions. Together we will continue our efforts to improve access to diagnosis, treatment and care for patients with rare diseases in Switzerland.
Internationaler Tag der Seltenen Krankheiten 2026: Gemeinsam Fortschritte stärken und die Versorgung nachhaltig verbessern
Am heutigen Internationalen Tag der Seltenen Krankheiten erinnert das Rare Disease Action Forum (RDAF) daran, dass über 500'000 Menschen in der Schweiz von einer seltenen Erkrankung betroffen sind, viele von ihnen weiterhin ohne gesicherten Zugang zu Diagnose,...