by emil.fuerst@lvl-up.ch | Feb 28, 2023 | Events
The Rare Disease Action Forum supports the International Rare Disease Day, a globally coordinated movement that advocates for equal access to healthcare, treatments and diagnoses for patients with rare diseases, which takes place on 28 February. Watch the Rare Disease... by emil.fuerst@lvl-up.ch | Jan 25, 2023 | Events
The Rare Disease Action Forum (RDAF) will host a multi-stakeholder webinar on ‘Early diagnosis for rare diseases’ on 29 March 2023, 17.00-18.30 CET. The webinar focuses on the diagnosis of rare diseases in Switzerland, provides an overview of the related challenges,... by emil.fuerst@lvl-up.ch | Dec 20, 2022 | General
The RDAF is continuously active to raise awareness about rare diseases and improve patients’ access to diagnosis, treatment and care in Switzerland. Below are the highlights of the RDAF activities in the second half the year. The full newsletter is available... by emil.fuerst@lvl-up.ch | Oct 17, 2022 | General
The RDAF co-signed a joint statement with other stakeholders on the revision of the Health Insurance Ordinance (KVV/OAMal) and Health Benefits Ordinance (KLV/OPAS). The statement highlights the potential negative impacts of the revision, including the following:... by emil.fuerst@lvl-up.ch | Oct 3, 2022 | General
In line with this concern, the RDAF would like to draw attention to the fact that the planned revision of the Health Insurance Ordinance (KVV), contrary to its stated objective, threatens patients’ access to treatment. Read our media release here.