RDAF 2022 General Assembly Meeting

    On 21 March 2022, the Rare Disease Action Forum (RDAF) held its annual General Assembly meeting. An overview of the RDAF’s activities in 2021 and an outlook for 2022 were presented. The RDAF President welcomed the new members and underlined that the collaborative...

    World Rare Disease Day

    This year’s Rare Disease Day takes place on 28 February. To mark the occasion, thousands of events are being organized across the world with the common objectives of raising awareness about rare diseases and connecting patients, their relatives and all other...

    The RDAF organizes a workshop on market access

    The Rare Disease Action Forum (RDAF) will host a virtual multi-stakeholder workshop on ‘Market access for orphan drugs in Switzerland’ on 26 April 2022 (2:00-5:00 pm). On the basis of a fictional case study, workshop participants will be given the opportunity to...

    Ipsen joins the Rare Disease Action Forum

    We are proud to welcome Ipsen as the newest member of the Rare Disease Action Forum. Reinforcing RDAF’s multi-stakeholder approach, they will be joining our other members including industry, patient organizations, healthcare professionals, and research organizations....