by soxedoze | Mar 21, 2022 | Association
On 21 March 2022, the Rare Disease Action Forum (RDAF) held its annual General Assembly meeting. An overview of the RDAF’s activities in 2021 and an outlook for 2022 were presented. The RDAF President welcomed the new members and underlined that the collaborative... by soxedoze | Mar 4, 2022 | Association, Events
On 5 March 2022, the Rare Disease Action Forum (RDAF) will participate in the Swiss Rare Disease Day organized by the umbrella organization for patient organizations in the field of rare diseases, ProRaris. The RDAF is looking forward to hear the latest developments... by soxedoze | Feb 21, 2022 | Events
This year’s Rare Disease Day takes place on 28 February. To mark the occasion, thousands of events are being organized across the world with the common objectives of raising awareness about rare diseases and connecting patients, their relatives and all other... by soxedoze | Jan 17, 2022 | Association, Events
The Rare Disease Action Forum (RDAF) will host a virtual multi-stakeholder workshop on ‘Market access for orphan drugs in Switzerland’ on 26 April 2022 (2:00-5:00 pm). On the basis of a fictional case study, workshop participants will be given the opportunity to... by soxedoze | Jan 13, 2022 | Association, Members
We are proud to welcome Ipsen as the newest member of the Rare Disease Action Forum. Reinforcing RDAF’s multi-stakeholder approach, they will be joining our other members including industry, patient organizations, healthcare professionals, and research organizations....