IMPROVING ACCESS TO DIAGNOSIS, TREAMENT AND CARE
    FOR PATIENTS WITH RARE DISEASES

    RDAF Board of Directors

    The Board of Directors is composed of at least three members who are elected once a year by the General Assembly. It implements the RDAF strategy defined annually by the General Assembly and oversees the activities carried out by the Working Group.

    Shayesteh Fürst-Ladani

    President

    Shayesteh Fürst-Ladani

    President of the Board

    Jasmin Barman-Aksözen

    Swiss Society for PorPhyria

    Jasmin Barman-Aksözen

    Swiss Society for PorPhyria

    Board Member

    Rea Lal

    Pfizer

    Rea Lal

    Pfizer

    Board Member

    Bettina Nauli

    ALEXION

    Bettina Nauli

    Alexion

    Board Member

    Alfred Wiesbauer

    ProRaris

    ProRaris

    Board Member

    Alessandro Strebel

    Roche

    Alessandro Strebel

    Roche

    Board Member

    Raffaella Willmann

    FSRMM

    Raffaella Willmann

    FSRMM

    Board Member

    Matthias Langefeld

    Ipsen

    Matthias Langefeld

    Ipsen

    Board Member

    Sandra Hediger

    Takeda

    Takeda

    Board Member