IMPROVING ACCESS TO DIAGNOSIS, TREAMENT AND CARE
FOR PATIENTS WITH RARE DISEASES

RDAF Board of Directors
The Board of Directors is composed of at least three members who are elected once a year by the General Assembly. It implements the RDAF strategy defined annually by the General Assembly and oversees the activities carried out by the Working Group.
Shayesteh Fürst-Ladani
SFL Pharma
Shayesteh Fürst-Ladani
SFL Pharma
President of the Board
Jasmin Barman-Aksözen
Swiss Society for PorPhyria
Jasmin Barman-Aksözen
Swiss Society for PorPhyria
Board Member
Rea Lal
Pfizer
Rea Lal
Pfizer
Board Member
Bettina Nauli
ALEXION
Bettina Nauli
Alexion
Board Member
Jacqueline de Sá
ProRaris
Jacqueline de Sá
ProRaris
Board Member
Alessandro Strebel
Roche
Alessandro Strebel
Roche
Board Member
Raffaella Willmann
FSRMM
Raffaella Willmann
FSRMM
Board Member