IMPROVING ACCESS TO DIAGNOSIS, TREAMENT AND CARE
FOR PATIENTS WITH RARE DISEASES

RDAF Board of Directors
The Board of Directors is composed of at least three members who are elected once a year by the General Assembly. It implements the RDAF strategy defined annually by the General Assembly and oversees the activities carried out by the Working Group.
Shayesteh Fürst-Ladani
President
Shayesteh Fürst-Ladani
President of the Board
Jasmin Barman-Aksözen
Swiss Society for PorPhyria
Jasmin Barman-Aksözen
Swiss Society for PorPhyria
Board Member
Rea Lal
Pfizer
Rea Lal
Pfizer
Board Member
Alfred Wiesbauer
ProRaris
ProRaris
Board Member
Alessandro Strebel
Roche
Alessandro Strebel
Roche
Board Member
Johannes Roth
LUKS
Johannes Roth
LUKS
Board Member
Matthias Langefeld
Ipsen
Matthias Langefeld
Ipsen
Board Member