by emil.fuerst@lvl-up.ch | Nov 21, 2023 | Association, General
The revision of the Health Insurance Ordinance (KVV/OAMal) and the Health Benefits Ordinance (KLV/OPAS), presented by the Federal Council in September, will further deteriorate access to treatment and quality of care for rare disease patients in Switzerland. The... by emil.fuerst@lvl-up.ch | Nov 8, 2023 | Association, General
The report from the RDAF multi-stakeholder workshop on post-marketing registries for rare diseases, which took place on 21 September 2023 in Basel, is now available. The workshop fostered an inclusive dialogue between academia, healthcare professionals, industry,... by emil.fuerst@lvl-up.ch | Jul 13, 2023 | Association, General
The Rare Disease Action Forum (RDAF) will host a multi-stakeholder workshop on post-marketing registries for rare diseases on 21 September 2023 (14.00 – 19.00 CEST) in Basel, Switzerland. The workshop will gather stakeholders active in the rare disease field to... by emil.fuerst@lvl-up.ch | Jul 13, 2023 | Association, General
We just released the first issue of the RDAF newsletter, which gives an overview of key policy developments and RDAF activities in the first half of the year. Highlights include: Overview of the latest policy developments relevant for the rare disease field... by emil.fuerst@lvl-up.ch | Mar 29, 2023 | Association, General
The Rare Disease Action Forum (RDAF) held its annual General Assembly meeting on 28 March 2023. During the meeting, the RDAF Secretariat presented an overview of the Association’s activities in 2022 and an outlook for 2023. The RDAF President underlined the progress... by soxedoze | Mar 21, 2022 | Association
On 21 March 2022, the Rare Disease Action Forum (RDAF) held its annual General Assembly meeting. An overview of the RDAF’s activities in 2021 and an outlook for 2022 were presented. The RDAF President welcomed the new members and underlined that the collaborative...