by soxedoze | Mar 4, 2022 | Association, Events
On 5 March 2022, the Rare Disease Action Forum (RDAF) will participate in the Swiss Rare Disease Day organized by the umbrella organization for patient organizations in the field of rare diseases, ProRaris. The RDAF is looking forward to hear the latest developments... by soxedoze | Feb 21, 2022 | Events
This year’s Rare Disease Day takes place on 28 February. To mark the occasion, thousands of events are being organized across the world with the common objectives of raising awareness about rare diseases and connecting patients, their relatives and all other... by soxedoze | Jan 17, 2022 | Association, Events
The Rare Disease Action Forum (RDAF) will host a virtual multi-stakeholder workshop on ‘Market access for orphan drugs in Switzerland’ on 26 April 2022 (2:00-5:00 pm). On the basis of a fictional case study, workshop participants will be given the opportunity to... by soxedoze | Jul 14, 2021 | Events, General, Publications
The Rare Disease Action Forum (RDAF) published the report about its multi-stakeholder workshop on ‘Registries for rare diseases in Switzerland’ which took place on 30 June 2021. The report provides an overview of the expert presentations and summarizes the exchanges... by soxedoze | Jun 30, 2021 | Events, General
On 30 June 2021, the RDAF organized a multi-stakeholder workshop on Swiss registries for rare diseases. Actors from patient organizations, industry, politician, research organizations, healthcare professionals and legal expert shared their perspectives about the... by soxedoze | May 20, 2021 | Events
The RDAF will host a virtual multi-stakeholder workshop dedicated to ‘Registries for rare diseases in Switzerland’ on 30 June, 2:00-5:00 pm (CEST). The workshop aims to discuss the Swiss Rare Disease Registry and disease specific registries and to define pathways to...