by soxedoze | Jul 14, 2021 | Events, General, Publications
The Rare Disease Action Forum (RDAF) published the report about its multi-stakeholder workshop on ‘Registries for rare diseases in Switzerland’ which took place on 30 June 2021. The report provides an overview of the expert presentations and summarizes the exchanges... by soxedoze | Jun 30, 2021 | Events, General
On 30 June 2021, the RDAF organized a multi-stakeholder workshop on Swiss registries for rare diseases. Actors from patient organizations, industry, politician, research organizations, healthcare professionals and legal expert shared their perspectives about the... by soxedoze | May 20, 2021 | Events
The RDAF will host a virtual multi-stakeholder workshop dedicated to ‘Registries for rare diseases in Switzerland’ on 30 June, 2:00-5:00 pm (CEST). The workshop aims to discuss the Swiss Rare Disease Registry and disease specific registries and to define pathways to... by soxedoze | Apr 19, 2021 | Events, Publications
The Rare Disease Action Forum (RDAF) published the report about its webinar “Access to diagnosis and treatment of rare diseases in Switzerland – Current status, challenges and initiatives”, which took place on 25 March 2021. The report gives an overview of the... by soxedoze | Mar 8, 2021 | Events
The RDAF will host a free webinar on ‘Access to diagnosis and treatment of rare diseases in Switzerland – Current status, challenges and initiatives on 25 March 2021 (8.30-9.30 CET). Join us to hear experts in the field of rare diseases from patient organizations,... by soxedoze | Mar 5, 2021 | Events, Rare Disease Day
The RDAF is attending the Rare Disease Day virtual event organized by ProRaris on 6 March. We will connect online with patient organizations, policy makers, industry representatives, physicians, researchers, payors and regulators active in the field of rare diseases...