by soxedoze | Jan 10, 2022 | General, Members
We are proud to welcome UCB Pharma and HOPOS as the newest members of the Rare Disease Action Forum. Reinforcing RDAF’s multi-stakeholder approach, they will be joining our other members including industry, patient organizations, healthcare professionals, and research... by soxedoze | Jul 14, 2021 | Events, General, Publications
The Rare Disease Action Forum (RDAF) published the report about its multi-stakeholder workshop on ‘Registries for rare diseases in Switzerland’ which took place on 30 June 2021. The report provides an overview of the expert presentations and summarizes the exchanges... by soxedoze | Jun 30, 2021 | Events, General
On 30 June 2021, the RDAF organized a multi-stakeholder workshop on Swiss registries for rare diseases. Actors from patient organizations, industry, politician, research organizations, healthcare professionals and legal expert shared their perspectives about the... by soxedoze | Jun 14, 2021 | Association, General, Members
We are proud to welcome Morbus Wilson Schweiz as the newest member of the Rare Disease Action Forum. Reinforcing RDAF’s multi-stakeholder approach, they will be joining our other members including industry, patient organizations, healthcare professionals, and research...