by emil.fuerst@lvl-up.ch | Jul 13, 2023 | Association, General
The Rare Disease Action Forum (RDAF) will host a multi-stakeholder workshop on post-marketing registries for rare diseases on 21 September 2023 (14.00 – 19.00 CEST) in Basel, Switzerland. The workshop will gather stakeholders active in the rare disease field to... by emil.fuerst@lvl-up.ch | Jul 13, 2023 | Association, General
We just released the first issue of the RDAF newsletter, which gives an overview of key policy developments and RDAF activities in the first half of the year. Highlights include: Overview of the latest policy developments relevant for the rare disease field... by emil.fuerst@lvl-up.ch | Mar 29, 2023 | Association, General
The Rare Disease Action Forum (RDAF) held its annual General Assembly meeting on 28 March 2023. During the meeting, the RDAF Secretariat presented an overview of the Association’s activities in 2022 and an outlook for 2023. The RDAF President underlined the progress... by emil.fuerst@lvl-up.ch | Dec 20, 2022 | General
The RDAF is continuously active to raise awareness about rare diseases and improve patients’ access to diagnosis, treatment and care in Switzerland. Below are the highlights of the RDAF activities in the second half the year. The full newsletter is available... by emil.fuerst@lvl-up.ch | Oct 17, 2022 | General
The RDAF co-signed a joint statement with other stakeholders on the revision of the Health Insurance Ordinance (KVV/OAMal) and Health Benefits Ordinance (KLV/OPAS). The statement highlights the potential negative impacts of the revision, including the following:... by emil.fuerst@lvl-up.ch | Oct 3, 2022 | General
In line with this concern, the RDAF would like to draw attention to the fact that the planned revision of the Health Insurance Ordinance (KVV), contrary to its stated objective, threatens patients’ access to treatment. Read our media release here.