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    Report of the RDAF Multi-Stakeholder Workshop on Registries for Rare Diseases

    by soxedoze | Jul 14, 2021 | Events, General, Publications

    The Rare Disease Action Forum (RDAF) published the report about its multi-stakeholder workshop on ‘Registries for rare diseases in Switzerland’ which took place on 30 June 2021. The report provides an overview of the expert presentations and summarizes the exchanges...

    RDAF Webinar on Rare Diseases in Switzerland – Report Published

    by soxedoze | Apr 19, 2021 | Events, Publications

    The Rare Disease Action Forum (RDAF) published the report about its webinar “Access to diagnosis and treatment of rare diseases in Switzerland – Current status, challenges and initiatives”, which took place on 25 March 2021. The report gives an overview of the...

    The RDAF submitted its statement for the public consultation on the ordinances for the revision of the Swiss Invalidity Insurance

    by soxedoze | Mar 19, 2021 | Invalidity Insurance, Publications

    On 19 March 2021, the RDAF submitted its statement to the Federal Social Insurance Office (BSV, Bundesamt für Sozialversicherungen) for the public consultation on the adjustment of various ordinances which are needed to implement the revised Swiss Invalidity Insurance...

    RDAF submits Statement to the Public Consultation on Cost-Containment Measures in the Healthcare Sector

    by soxedoze | Dec 10, 2020 | BAG/OFSP, Publications

    The Rare Disease Action Forum shared with the Swiss Federal Office of Public Health its statement on the public consultation on the revision of the Federal Health Insurance Act concerning package 2 of the cost containment measures. The RDAF highlighted measures that...

    RDAF Multi-Stakeholer Workshop “Registries for Rare Diseases in Switzerland” – Report Published

    by soxedoze | Jun 25, 2020 | Events, Publications

    The Rare Disease Action Forum (RDAF) published the report about its multi-stakeholder workshop “registries for rare diseases in Switzerland”. The report highlights the key discussion points which were shared by expert presentations from patients, physicians and...

    Position paper on IV revision finalized

    by soxedoze | Jul 23, 2018 | Invalidity Insurance, Publications

    Position paper on IV revision finalizedOn 12 July 2018, the Rare Disease Action Forum (RDAF) finalized a position paper on the ongoing revision of the Swiss Invalidity Insurance (IV). The discussions on this issue are ongoing in Parliament, where the Federal...
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