by soxedoze | Mar 5, 2021 | Events, Rare Disease Day
The RDAF is attending the Rare Disease Day virtual event organized by ProRaris on 6 March. We will connect online with patient organizations, policy makers, industry representatives, physicians, researchers, payors and regulators active in the field of rare diseases... by soxedoze | Feb 26, 2021 | Events, Rare Disease Day
This year’s world Rare Disease Day takes place on 28 February 2021. To mark the occasion, thousands of events are being organized across the world with the common objectives of raising awareness about rare diseases and connecting patients, their relatives and all... by soxedoze | Feb 28, 2019 | Events, Rare Disease Day
On 2 March 2019, ProRaris, the Swiss patient umbrella organization for rare diseases, will host the 9th Rare Disease Day meeting in Basel, Switzerland. The aim of this event is to raise awareness and generate momentum to further improve the situation for patients with... by soxedoze | Feb 28, 2019 | Events, Rare Disease Day
While rare means rare for each individual disease, rare becomes many across all those diseases that affect 300 million people and their families who have to cope with these diseases and their impact on quality of life and life expectancy. The Rare Disease Action Forum... by soxedoze | Feb 28, 2018 | Events, Rare Disease Day
On 3 March 2018, ProRaris, the Swiss patient umbrella organization for rare diseases, organizes the Rare Disease Day in Bern, Switzerland. The aim of this event is to raise awareness and generate momentum to further develop national plans and policies to improve the...