IMPROVING ACCESS TO DIAGNOSIS, TREAMENT AND CARE
    FOR PATIENTS WITH RARE DISEASES

    Who can become a member

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    Patient organizations in the area of rare diseases

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    Not-for-profit organizations focused on rare diseases

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    Companies that develop and/or commercialize treatments or diagnostics

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    Healthcare institutions and professionals active in the area of rare diseases

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    Research organizations in the field of rare diseases

    Benefits for our members

    Participation in working groups to proactively shape future policies

    Engagement and dialogue with
    stakeholders in the rare disease field

    Knowledge sharing through an expert scientific and medical network active in a wide range of rare diseases

    Participation in policy discussion and outreach activities to address key rare disease topics

    Opportunities to contribute to improve access to diagnosis, treatment and care for rare diseases patients

    Complementary registration for multi-stakeholder workshops

    How to become a member?

    To apply for membership and/or receive more information, please contact:

    Rare Disease Action Forum
    c/o SFL Regulatory Affairs & Scientific Communication GmbH
    Aeschenvorstadt 52, CH-4051 Basel, Schweiz
    Tel: +41 61 361 9443
    info@rda-forum.org