IMPROVING ACCESS TO DIAGNOSIS, TREAMENT AND CARE
FOR PATIENTS WITH RARE DISEASES

Who can become a member
Patient organizations in the area of rare diseases
Not-for-profit organizations focused on rare diseases
Companies that develop and/or commercialize treatments or diagnostics
Healthcare institutions and professionals active in the area of rare diseases
Research organizations in the field of rare diseases
Benefits for our members
Participation in working groups to proactively shape future policies
Engagement and dialogue with
stakeholders in the rare disease field
Knowledge sharing through an expert scientific and medical network active in a wide range of rare diseases
Participation in policy discussion and outreach activities to address key rare disease topics
Opportunities to contribute to improve access to diagnosis, treatment and care for rare diseases patients
Complementary registration for multi-stakeholder workshops
How to become a member?
Membership applications must be submitted to the RDAF Secretariat by email. The applications are reviewed and approved by the Board of Directors.
To apply for membership and/or receive more information, please contact:
Rare Disease Action Forum
c/o SFL Regulatory Affairs & Scientific Communication GmbH
Aeschenvorstadt 52, CH-4051 Basel, Schweiz
Tel: +41 61 361 9443
info@rda-forum.org