IMPROVING ACCESS TO DIAGNOSIS, TREAMENT AND CARE
    FOR PATIENTS WITH RARE DISEASES

    The RDAF brings together experts from patient and research organizations, industry and healthcare professionals active in the rare disease field in Switzerland.

    Patient organizations

    Industry


    Novartis Gene Therapies

    Healthcare professionals, healthcare and research organizations

    Forschungszentrum für das Kind, Universitätskinderspital Zürich – Eleonorenstiftung

    Prof. Dr. Veronika Waldboth, ZHAW​

    Prof. Dr. med. Philipp Latzin

    Service de Médecine Génétique – Centre Hospitalier Universitaire Vaudois

    Prof. Dr. Johannes Roth, Zentrum für seltene Krankheiten, LUKS, Kinderspital Zentralschweiz