Fostering dialogue and united actions in the field of rare diseases

    The RDAF enables dialogue with key stakeholders in the field of rare diseases, including patients, physicians, the pharmaceutical industry, public authorities, and payors.

    Multi-stakeholder workshops

    Since 2015, the RDAF regularly organizes and moderates multi-stakeholder workshops in order to identify pathways for improvement and define action steps.

    Value assessment for orphan drugs

    Access to diagnosis

    Registries for rare diseases

    Access to diagnosis

    Access to therapies

     Reference centers and international cooperation

    You can find the report from the RDAF most recent workshop here.

    Other events

    In March 2021, RDAF organized a webinar on rare diseases in Switzerland. Guest speakers included representatives from the pharmaceutical industry, healthcare professionals and experts on regulatory affairs. The report on the webinar can be found here.