Fostering dialogue and united actions in the field of rare diseases

    The RDAF enables dialogue with key stakeholders in the field of rare diseases, including patients, physicians, the pharmaceutical industry, public authorities, and payors.

    Multi-stakeholder workshops

    Since 2015, the RDAF regularly organizes and moderates multi-stakeholder workshops in order to identify pathways for improvement and define action steps.

    Value assessment for orphan drugs

    Access to diagnosis

    Registries for rare diseases

    Access to diagnosis

    Access to therapies

     Reference centers and international cooperation

    You can find the report from the RDAF most recent workshop here.

    Other events

    On 29 March 2023, the RDAF will host a multi-stakeholder webinar on ‘Early diagnosis for rare diseases’. The webinar focuses on the diagnosis of rare diseases in Switzerland, provides an overview of the related challenges, and discusses potential solutions to improve access to diagnosis for patients. The webinar program is available here.