The Rare Disease Action Forum (RDAF) published the report about its multi-stakeholder workshop on ‘Registries for rare diseases in Switzerland’ which took place on 30 June 2021....
On 30 June 2021, the RDAF organized a multi-stakeholder workshop on Swiss registries for rare diseases. Actors from patient organizations, industry, politician, research...
We are proud to welcome Morbus Wilson Schweiz as the newest member of the Rare Disease Action Forum. Reinforcing RDAF’s multi-stakeholder approach, they will be joining our other...
The RDAF will host a virtual multi-stakeholder workshop dedicated to ‘Registries for rare diseases in Switzerland’ on 30 June, 2:00-5:00 pm (CEST). The workshop aims to discuss...
The Rare Disease Action Forum (RDAF) published the report about its webinar “Access to diagnosis and treatment of rare diseases in Switzerland – Current status, challenges and...
We are proud to welcome VectivBio as the newest member of the Rare Disease Action Forum. Reinforcing RDAF’s multi-stakeholder approach, they will be joining our other members...
We are proud to welcome SMA Schweiz as the newest member of the Rare Disease Action Forum. Reinforcing RDAF’s multi-stakeholder approach, they will be joining our other members...
On 19 March 2021, the RDAF submitted its statement to the Federal Social Insurance Office (BSV, Bundesamt für Sozialversicherungen) for the public consultation on the adjustment...
We are proud to welcome Novartis Gene Therapies as the newest member of the Rare Disease Action Forum. Reinforcing RDAF’s multi-stakeholder approach, they will be joining our...