Am heutigen Internationalen Tag der Seltenen Krankheiten erinnert das Rare Disease Action Forum (RDAF) daran, dass über 500'000 Menschen in der Schweiz von einer seltenen...

Am 28. Februar 2025 begehen wir den Internationalen Tag der Seltenen Krankheiten. Dieser Tag macht darauf aufmerksam, dass Millionen von Menschen weltweit – und auch hier in der...

On 26 November 2024, representatives from politics, patient organisations, healthcare, research, authorities and industry gathered in Bern for the Swiss Rare Disease Summit. The...

The Rare Disease Action Forum (RDAF) will host the Swiss Rare Disease Summit on 26 November 2024 (9.30 – 17.30 CEST). The event will take place in Bern, with the additional...

We are happy to welcome Förderverein für Kinder mit seltenen Krankheiten (KMSK) as the newest member of the Rare Disease Action Forum (RDAF). With Förderverein für Kinder mit...

We are very pleased to welcome the Centre for Community-Driven Research (CCDR) as the newest member of the Rare Disease Action Forum. CCDR’s focus on facilitating patient...

We are delighted to announce Boehringer Ingelheim as new member of the Rare Disease Action Forum. Boehringer Ingelheim’s membership fortifies RDAF's multi-stakeholder base,...

The Rare Disease Action Forum (RDAF) supports the International Rare Disease Day, a worldwide campaign that promotes access to diagnosis and treatment for individuals living with...

We are proud to welcome the HTA International Rare Disease Interest Group as the newest member of the Rare Disease Action Forum. Reinforcing RDAF’s multi-stakeholder approach,...