This year’s Rare Disease Day takes place on 28 February. To mark the occasion, thousands of events are being organized across the world with the common objectives of raising...
World Rare Disease Day
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The RDAF organizes a workshop on market access
The Rare Disease Action Forum (RDAF) will host a virtual multi-stakeholder workshop on ‘Market access for orphan drugs in Switzerland’ on 26 April 2022 (2:00-5:00 pm). On the...
Ipsen joins the Rare Disease Action Forum
We are proud to welcome Ipsen as the newest member of the Rare Disease Action Forum. Reinforcing RDAF’s multi-stakeholder approach, they will be joining our other members...
UCB Pharma and HOPOS join the Rare Disease Action Forum
We are proud to welcome UCB Pharma and HOPOS as the newest members of the Rare Disease Action Forum. Reinforcing RDAF’s multi-stakeholder approach, they will be joining our other...
Report of the RDAF Multi-Stakeholder Workshop on Registries for Rare Diseases
The Rare Disease Action Forum (RDAF) published the report about its multi-stakeholder workshop on ‘Registries for rare diseases in Switzerland’ which took place on 30 June 2021....
The RDAF hosted a Multi-Stakeholder Workshop on Registries for Rare Diseases
On 30 June 2021, the RDAF organized a multi-stakeholder workshop on Swiss registries for rare diseases. Actors from patient organizations, industry, politician, research...
Morbus Wilson Schweiz joins the Rare Disease Action Forum
We are proud to welcome Morbus Wilson Schweiz as the newest member of the Rare Disease Action Forum. Reinforcing RDAF’s multi-stakeholder approach, they will be joining our other...
The RDAF Organizes a Multi-Stakeholder Workshop on Registries for Rare Diseases on 30 June 2021
The RDAF will host a virtual multi-stakeholder workshop dedicated to ‘Registries for rare diseases in Switzerland’ on 30 June, 2:00-5:00 pm (CEST). The workshop aims to discuss...
RDAF Webinar on Rare Diseases in Switzerland – Report Published
The Rare Disease Action Forum (RDAF) published the report about its webinar “Access to diagnosis and treatment of rare diseases in Switzerland – Current status, challenges and...