The newsletter, which is published twice a year, gives an overview of all the Rare Disease Action Forum (RDAF) activities during the past half year to raise awareness about rare...
The RDAF publishes its newsletter
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RDAF 2022 General Assembly Meeting
On 21 March 2022, the Rare Disease Action Forum (RDAF) held its annual General Assembly meeting. An overview of the RDAF’s activities in 2021 and an outlook for 2022 were...
The RDAF joins the Rare Disease Day organized by ProRaris
On 5 March 2022, the Rare Disease Action Forum (RDAF) will participate in the Swiss Rare Disease Day organized by the umbrella organization for patient organizations in the field...
World Rare Disease Day
This year’s Rare Disease Day takes place on 28 February. To mark the occasion, thousands of events are being organized across the world with the common objectives of raising...
The RDAF organizes a workshop on market access
The Rare Disease Action Forum (RDAF) will host a virtual multi-stakeholder workshop on ‘Market access for orphan drugs in Switzerland’ on 26 April 2022 (2:00-5:00 pm). On the...
Ipsen joins the Rare Disease Action Forum
We are proud to welcome Ipsen as the newest member of the Rare Disease Action Forum. Reinforcing RDAF’s multi-stakeholder approach, they will be joining our other members...
UCB Pharma and HOPOS join the Rare Disease Action Forum
We are proud to welcome UCB Pharma and HOPOS as the newest members of the Rare Disease Action Forum. Reinforcing RDAF’s multi-stakeholder approach, they will be joining our other...
Report of the RDAF Multi-Stakeholder Workshop on Registries for Rare Diseases
The Rare Disease Action Forum (RDAF) published the report about its multi-stakeholder workshop on ‘Registries for rare diseases in Switzerland’ which took place on 30 June 2021....
The RDAF hosted a Multi-Stakeholder Workshop on Registries for Rare Diseases
On 30 June 2021, the RDAF organized a multi-stakeholder workshop on Swiss registries for rare diseases. Actors from patient organizations, industry, politician, research...