This year’s world Rare Disease Day takes place on 28 February 2021. To mark the occasion, thousands of events are being organized across the world with the common objectives of...
World Rare Disease Day on 28 February 2021
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RDAF submits Statement to the Public Consultation on Cost-Containment Measures in the Healthcare Sector
The Rare Disease Action Forum shared with the Swiss Federal Office of Public Health its statement on the public consultation on the revision of the Federal Health Insurance Act...
RETINA SUISSE and the SWISS HEMOPHILIA SOCIETY (SHG) join the Rare Disease Action Forum
We proudly welcome the patient organizations Retina Suisse and the Swiss Hemophilia Society (SHG) as the newest member of the Rare Disease Action Forum. Reinforcing RDAF’s...
BIOGEN and PROF. DR. Pascal Escher join the Rare Disease Action Forum
We are proud to welcome Biogen and Prof. Dr. Pascal Escher as the newest members of the Rare Disease Action Forum. Reinforcing RDAF’s multi-stakeholder approach, they will be...
VIFOR PHARMA joins the Rare Disease Action Forum as member
We are proud to welcome Vifor Pharma as the newest member of the Rare Disease Action Forum. We look forward to Vifor’s contribution to the collaborative efforts at the RDAF...
RDAF Multi-Stakeholer Workshop “Registries for Rare Diseases in Switzerland” – Report Published
The Rare Disease Action Forum (RDAF) published the report about its multi-stakeholder workshop “registries for rare diseases in Switzerland”. The report highlights the key...
RDAF attends the European Conference on Rare Diseases
The RDAF is attending the 10th European Conference on Rare Diseases & Orphan Products (14-15 May 2020). We will connect online with patient representatives, policy makers,...
Outcomes from the RDAF General Assembly and Multi-Stakeholder Workshop April 2020
The RDAF General Assembly and the RDAF expert multi-stakeholder workshop on “registries for rare diseases in Switzerland” were held on 8 April 2020. The General Assembly approved...
Partner Event: 8TH Rare Diseases Summer School 15-17 July 2020 | Warth, Thurgau
The 8th Rare Diseases Summer School (Rare Disease Initiative Zurich) will focus on a wide variety of subjects in the arena of rare diseases, from disease mechanisms and animal...