Policy work undertaken by the RDAF

    In order to achieve its goals, the RDAF:

    • Monitors and assesses rare disease-related policies and regulations, new developments and initiatives
    • Develops positions in order to adapt the Swiss regulatory environment to the needs of patients with rare diseases and improve their access to diagnosis and treatments,
    • Engages in outreach activities with public authorities, decision makers and other relevant stakeholders to carry across this message.

      The work of the RDAF covers areas such as:

      • Patients’ access to diagnosis
      • Approval pathways for orphan drugs
      • Therapy assessment and reimbursement through their inscription in the Specialties List
      • Regime for reimbursement in individual cases
      • Registries for rare diseases