
Policy work undertaken by the RDAF
In order to achieve its goals, the RDAF:
- Monitors and assesses rare disease-related policies and regulations, new developments and initiatives
- Develops positions in order to adapt the Swiss regulatory environment to the needs of patients with rare diseases and improve their access to diagnosis and treatments,
- Engages in outreach activities with public authorities, decision makers and other relevant stakeholders to carry across this message.
The work of the RDAF covers areas such as:
- Patients’ access to diagnosis
- Approval pathways for orphan drugs
- Therapy assessment and reimbursement through their inscription in the Specialties List
- Regime for reimbursement in individual cases
- Registries for rare diseases