IMPROVING ACCESS TO DIAGNOSIS, TREAMENT AND CARE
FOR PATIENTS WITH RARE DISEASES
The RDAF addresses the challenges of rare diseases that are specifically related to the Swiss environment and the reimbursement of orphan drugs. The RDAF aims to:
Raise awareness about rare diseases in Switzerland and foster dialogue about patients’ needs
Patients with rare diseases face specific challenges. The RDAF is committed to increasing awareness among decision-makers about the specificities of rare diseases. To that end, we seek dialogue with key stakeholders in order to develop a common understanding of patients’ needs.
Assess and adapt the Swiss environment to the needs of patients with rare diseases
We are committed to assessing key areas of rare disease-related policies, regulations and processes. We actively work to shape the regulatory framework for rare diseases in Switzerland.
Adapt the standards to enable equal and fair treatment for patients with rare diseases
The RDAF liaises with experts and policy makers to better consider the specificities of rare diseases for the assessment of treatment options. We work towards a timely and predictable reimbursement process for orphan drugs.