Terms & Conditions

    The “Rare Disease Action Forum” Association (“RDAF”) provides the https://www.rda-forum.org web site (the “Site”) to supply general information about RDAF and its services. You may use this site subject to your compliance with these terms and conditions.

    Your acceptance of these terms and conditions<br />

    Please take a few minutes to carefully review these terms and conditions. By accessing and using this Site you agree to follow and be bound by these terms and conditions. If you do not agree to follow and be bound by these terms and conditions, you may not access, use or download materials from this Site.

    These terms and conditions may change

    RDAF reserves the right to update or modify these terms and conditions at any time without prior notice. RDAF will do so by posting an updated or modified version of these terms and conditions on this Site. Your use of this Site following any such change constitutes your agreement to follow and be bound by the revised terms and conditions. For this reason, we encourage you to review these terms and conditions every time you use this Site.

    Privacy statement

    RDAF is committed to respecting the personal privacy of the individuals who use this Site. The privacy statement posted on this site describes RDAF’s current policies and practices with regard to the personal information collected by RDAF through this Site. The privacy statement is part of these terms and conditions. When you agree to be bound by these terms and conditions, you are consenting to the collection, use and disclosure of your personal information in accordance with the privacy statement on this Site. Please take a few minutes to review this before accepting its terms.

    Right to change Site

    RDAF reserves the right to alter the content and functionality of this Site in any way, or to limit access to this Site, or to shut down this Site, at any time, for any reason, without prior notice, and will not be liable in any way to you or your company for possible consequences of such changes or shut down.

    Copyright notice and limited license

    Everything you see and hear on this Site (the “Content”), including, for example, all of the text, photographs, illustrations, graphics, audio clips, video clips, and audio-video clips, is copyrighted.

    You are granted a non-exclusive license to the Content subject, however, to the following limitations:

    You may download, store, print, copy and share Content from this Site, provided that you:

    (1) only use the Content for non-commercial use or to further your business dealings with RDAF;

    (2) only publish or post any part of the Content on any other internet site or in any other media in a similar context to that in which it is presented on this Site;

    (3) attribute the Content to RDAF;

    (4) do not modify or alter the Content in any way or delete or modify any copyright or trademark notices or notices of confidentiality.

    Except as expressly stated above, you may not copy, download, print, publish, display, perform, distribute, transmit, transfer, translate, modify, add to, update, compile, abridge or in any other way transform or adapt all or any part of the Content of this Site without first obtaining written permission from RDAF.

    Except as expressly stated above, no right, title or interest in the downloaded Content is transferred to you when you download content from this Site. Except for the limited, non-exclusive license expressly granted above, nothing contained in these terms and conditions and on this Site shall be construed as conferring a license or any other right under any copyright, trademark, patent, or other intellectual property right of RDAF or any third party.

    Trademark notice

    All of the trademarks, service marks and logos displayed on this Site (the “Trademark(s)”) are registered and unregistered trademarks of RDAF or third parties who have licensed their trademarks to RDAF.

    Except as expressly stated in these terms and conditions, you may not reproduce, display or otherwise use any Trademark without first obtaining RDAF’s written permission.

    Unsolicited ideas<br />

    RDAF welcomes your comments and feedback regarding this Site. All information and materials submitted to RDAF through this Site, such as any comments, feedback, ideas, questions, designs, data or the like, will be considered non-confidential and nonproprietary. For this reason, we ask that you do not send us any information or materials that you do not wish to assign to us, including, without limitation, any confidential information and any original creative materials.

    By submitting communications and/or materials to RDAF through this Site, you assign to RDAF, free of charge, all worldwide rights, title and interest in all copyrights and other intellectual property rights in the information and/or materials you submit to RDAF. RDAF will be entitled to use any information and/or materials you submit through this Site, and any ideas, concepts, know-how or techniques contained in any such information and/or materials, for any purpose whatsoever, included but not limited to developing, manufacturing and marketing products using such information or materials without restriction and without compensating you in any way.

    However, RDAF will not use any information or materials you submit through this Site in a way that violates applicable privacy laws. In particular, RDAF will not release your name or otherwise publicize the fact that you submitted information or materials to us unless: (a) we obtain your permission to use your name; or (b) we first notify you that the materials or other information you submit to a particular part of this Site will be published or otherwise used with your name on it; or (c) we are required to do so by law.

    You are responsible for the communications you submit through this Site, including, without limitation, their truthfulness and accuracy.

    Please note that your submissions (e.g. by email) do not have any legally binding effect on RDAF. Therefore, invoices, reminders and the like must be exclusively sent to the addresses set forth in the respective contract.

    Third-party information

    Some of the information, articles and other materials available through this Site are provided to RDAF by third-parties. Wherever practical, the source of these third-party materials is identified. These third-party materials are provided for your interest and convenience only. RDAF does not warrant or represent that these materials are current, accurate, complete or reliable. RDAF accepts no responsibility for any use to which third party information is put.

    Links to other web sites

    This Site may contain hyperlinks to web sites that are not operated by RDAF. These hyperlinks are provided for your reference and convenience only, and do not imply any endorsement of the material on these third-party web sites or any association with their operators. RDAF does not control these web sites and is not responsible for their contents. You access and use these web sites solely at your own risk.

    Product and services information

    Any information contained or referenced in this Site is solely provided as an introduction to RDAF, its services and products. Advice given on this Site does not exempt you from conducting your own checks on our latest advice – particularly our safety datasheets and technical specifications – and on our products, with a view to their suitability for the intended processes and purposes. Should you require any advice or instructions concerning our products or services, please contact us directly.

    Disclaimer of warranties

    This Site is provided on an “as is,” “as available” basis, without representations or warranties of any kind. To the fullest extent permitted under applicable law, RDAF and its service providers and licensors disclaim all warranties, express, implied, statutory or otherwise. Without limiting the foregoing, to the fullest extent permitted by law, RDAF and its service providers and licensors hereby disclaim (a) all warranties of merchantability, fitness for a particular purpose, title and non-infringement with respect to this Site and its content and any services or products described on or made available through this Site; (b) warranties relating to delays, interruptions, errors, or omissions in the operation of this Site or any part of this Site; (c) warranties relating to the transmission or delivery of this Site or its availability at any particular time or location; (d) warranties relating to the security of this Site or that the Content of this Site is free of viruses, worms or other code that may manifest contaminating or destructive properties; (e) warranties relating to the use, validity, accuracy, currency, completeness, suitability, reliability, or the results of the use of this Site, including any Content, including product labels, products or services made available through this Site; and (f) warranties relating to websites to which this Site is linked.

    Certain jurisdictions do not allow disclaimers of certain warranties or limitations on how long an implied warranty lasts, so one or all of the foregoing limitations may not apply to you and/or your company.

    Limitation of liability

    Your and your company’s use of this Site, its Content and any services or products made available through this Site is at your and your company’s sole risk. Under no circumstances shall RDAF or its service providers and licensors, including their respective directors, officers, employees, or agents, be liable for any losses or damages arising out of or in connection with your or your company’s access of, use of, or inability to use, this Site, its Content, including any services or products made available through this Site or your or your company’s reliance on any information provided through this Site. Without limiting the foregoing, RDAF and its service providers and licensors shall not be liable in any way for possible errors or omissions in the Content; this applies in particular to any information about services supplied by RDAF. This is a comprehensive limitation of liability that applies to all losses and damages of any kind whatsoever, whether direct or indirect, general, special, incidental, consequential, exemplary or otherwise, including without limitation, interruption of business, loss of or damage to data or goodwill, and loss of revenue or profits.

    This limitation of liability shall apply to the fullest extent permitted by applicable law, whether the alleged liability is based on contract, negligence, tort, strict liability or any other basis and even if an authorized representative of RDAF has been advised of or should have known of the possibility of such damages, and without regard to the effectiveness of other remedies.

    You and your company acknowledge and agree that RDAF could not make this Site and its Content available to you and your company at no charge if its liability were not limited as set forth above.

    If any of these limitations of liability is found to be invalid or unenforceable for any reason, then the aggregate liability of RDAF and its service providers and licensors under such circumstances for liabilities that otherwise would have been limited shall not exceed one hundred ($100.00) dollars (or the local currency equivalent).

    Certain jurisdictions do not allow the limitation of certain damages, so some or all of this limitation of liability may not apply to you and/or your company and you and/or your company may have additional rights.

    Governing law and jurisdiction

    These terms and conditions shall be governed by, are subject to, and construed in accordance with, the laws of Switzerland without regard to conflict of law principles.


    Our failure at any time to require performance of any provision of these terms and conditions or to exercise any right provided for herein shall not be deemed a waiver of such provision or such right. All waivers must be in writing and signed by the party to be bound. Unless the written waiver contains an express statement to the contrary, no waiver by RDAF of any breach of any provision of these terms and conditions of any right provided for herein shall be construed as a waiver of any continuing or succeeding breach of such provision, a waiver of the provision itself, or a waiver of any right under these terms and conditions.


    If any provision of these terms and conditions is held by a court of competent jurisdiction to be contrary to law, such provision shall be changed and interpreted so as to best accomplish the objectives of the original provision to the fullest extent allowed by law and the remaining provisions of these terms and conditions shall remain in full force and effect.

    Entire agreement

    These terms and conditions constitute the entire agreement between you and your company and RDAF with respect to your and your company’s access to and/or use of this Site. These terms and conditions shall not be amended except as expressly set forth herein.